Ke hāʻawi nei nā ʻenehana uila uila i kāna kaʻa ʻo Liberty Trike i nā keiki me kahi maʻi Neuromuscular Rare.

ʻO SMA kahi hana kūlohelohe e hoʻomaka i loko o ka ʻōnaehana waena a hoʻopili i nā mākala āpau i loko o ke kino. Ma muli o ke ʻano degenerative o ka maʻi, ʻo nā pēpē, nā keiki a me nā mākua me SMA e mākaukau i ka emi ʻana o ka mana muscle ma mua o ka manawa ʻoiai ʻo ka wikiwiki a me ke koʻikoʻi hiki ke ʻokoʻa i waena o ka poʻe.

Hāʻawi ʻo Liberty Trike i nā keiki me SMA, a me nā mea ʻē aʻe e pili ana i nā pilikia kino, e loaʻa i nā ʻano neʻe ʻole e ʻike maʻalahi ʻia ma loko o ke kikowaena pūnaewele neʻe.

"Kūpono nā keiki me SMA i kahi koho neʻe nui aʻe. A ʻo ko lākou makuakāne a me ko lākou makuahine, hāʻawi i kēlā me kēia mea liʻiliʻi e hoʻonui i ko lākou mau keiki, hiki iā lākou ke kōkua iki, ” olelo ʻO Jason Kraft, Luna Hoʻokele ma nā ʻenehana elele eletise Electrical.

Hoʻomaka ka manaʻo paʻa o EBT e hāʻawi i nā kaʻa i ka hope loa o ka makahiki Kimberly Heinrich, ka makuahine o Allison, he wahine e 11 ona mau makahiki me ka makahiki o ka makahiki leka uila o SMA ʻo email i ka ʻoihana e ʻōlelo no ka hiki ʻana i kekahi hāmeʻa e kōkua ai Allison e loaʻa hou nā mea e pono ai ke ola a mālama pū me kona mau hoahānau ma nā kaʻa holo kaʻa.

Ua ʻōlelo ʻo Kim, "Pono ʻo ia e 'hoʻohana ia' a i ʻole e nalo ia ia ... ʻo ia ka mākia a kēlā mau keiki e hoʻāʻo nei e mālama i ka neʻe ʻana, a me ke kūʻokoʻa i kahi maʻi aloha ʻole. ʻAʻole hoʻomaʻamaʻa wale kēia i ka pono kaiaulu, hoʻopuka maʻalahi ʻo ia e like me kona mau kaikunāne a me nā hoa aloha like ʻole. E hana wau i nā mea liʻiliʻi a pau i hiki iaʻu ke kōkua e hana iā ia. ”

I kēlā me kēia pule ma hope Kim a Allison i loko o ka hale kūʻai o EBT i waho Philadelphia no ka nānā ʻana i ka huakaʻi. “ʻAʻole au i ʻike i kekahi e lawe i kekahi o kā mākou uila uila i ke ala ʻoi loa Allison lawe i ka Liberty Trike, ” wahi a Kraft. "Ua hoʻoneʻe ʻia wau e Allison eia naʻe hoʻokahi mea nui i kuʻi iaʻu e like me ka nui o nā pōhaku lepo i kēlā lā. ʻEkolu aʻu mau keiki kokoke ʻO Allison's makahiki a aniani moakaka ke kaumaha o Kim i kekahi mea e hoʻomaikaʻi ai ʻO Allison's kūlana kiʻekiʻe o ke ola. I kēlā kekona, maopopo iaʻu ʻaʻole mākou e kōkua wale Allison, e kōkua nō naʻe mākou iā Kim. ”

Ua hoʻolaʻa ʻia nā ʻike ʻepekema uila uila nā ka hāʻawi ʻana i nā ʻenehana Liberty he pono i nā hale noho i 10 a ua hoʻolālā i ka kānalua i kēlā nui ma 2020. Ua kākau ʻo EBT. Kimberly Heinrich e kōkua i kēlā hana a ma ka manawa o kēia hoʻolaha paʻi, ua koho ʻia he 4 o nā mea loaʻa mua he ʻumi. He paʻakikī ʻo Kim i ka hana ʻana i ka ʻeono mau makahiki i hala.

E pili ana i ka Holoholo Holoholo
ʻO Liberty Trike kahi ʻāpana o ka ʻepekema uila pili uila, Inc., kahi hui e hana i kahi loea o ka ulu ʻana, ka hana ʻana a me ka hāʻawi ʻana i nā ʻenehana hoʻoili uila uila kiʻekiʻe kiʻekiʻe, nā motika, nā paila, nā mea, a me nā pono hana.

No ke aʻo ʻana keu, e hele i E hoʻōla iā SMA
E hoʻolohe iā ʻO Jason Kraft, i ka ʻO Greg Gutfeld Podcast
E hele Uila ʻEkele uila
E hele Līkini Liberty

Hoʻokaʻaʻike: 
ʻO Robert Irving
215-514-6215
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