Cov Hluav Taws Xob Hluav Taws Xob Cov Hluav Taws Xob Tau Tshaj Tawm Rau Nws Txoj Kev ywj pheej Trike rau Cov Menyuam Muaj Kab Mob Neuromuscular

SMA yog lub caj ces tsis zoo uas pib hauv nruab nrab lub paj hlwb thiab cuam tshuam tag nrho cov leeg nqaij hauv lub cev. Raws li qhov kev mob tsis zoo ntawm tus mob, menyuam mos liab, menyuam yaus thiab cov laus nrog SMA yuav tshaj lij kev poob qis hauv cov leeg ua kom muaj zog thaum lub sijhawm txawm hais tias qhov nrawm thiab mob hnyav tuaj yeem sib txawv ntawm tib neeg.

Kev ywj pheej Trike tso cai rau menyuam yaus nrog SMA, thiab lwm tus muaj feem cuam tshuam txog ntawm lub cev, kom muaj ntau yam tsis muaj kev ywj pheej tsis yog nrhiav pom nyob rau hauv kev kho mob hauv lub cev nkaus xwb.

“Cov menyuam yaus SMA tsim nyog xaiv ntau qhov kev mus los tau. Thiab lawv txiv thiab niam, uas muab txhua yam me me los ua kom lawv cov menyuam lub neej siab dua, tuaj yeem siv me ntsis pab, ” Hais Jason Kraft ua, Tus Thawj Haujlwm ntawm Hluav Taws Xob Hluav Taws Xob Kev siv hluav taws xob.

EBT qhov kev txiav txim siab los pab nyiaj lub trikes pib thaum xyoo xaus thaum Kimberly Heinrich: XNUMX Lab tus kiv cua tos koj rau Webtalk!, niam, Allison, tus poj niam 11-xyoo-laus nrog SMA tau xa email rau lub tuam txhab rau kev pom zoo ntawm cov hluav taws xob sib tw uas tuaj yeem pab tau Allison tau txais ib co ntau xav lub cev tshuaj thiab hais ntxiv nrog rau nws cov kwv tij nyob rau tsev neeg caij tsheb tuam.

Kim hais, "Nws yuav tsum 'siv nws' lossis nws yuav plam nws ... nws yog cov lus qhuab qhia ntawm cov menyuam yaus npaj siab saib xyuas kev mus ncig, thiab kev ywj pheej ntawm kev muaj mob tsis zoo. Qhov no tsis yog kev cob qhia tab sis kev ncaj ncees, hais tias nws nthuav tawm ntau li nws cov nus thiab cov phooj ywg sib txawv. Kuv yuav ua txhua yam me ntsis uas kuv ua tau los pab ua kom nws tshwm sim rau nws. ”

Txhua lub lim tiam tom qab Kim thiab Allison tau nyob hauv EBT lub tsev khaws khoom nraum zoov Philadelphia rau rau saib mus txawv tebchaws. “Kuv tsis tau pom dua ib tug neeg coj mus rau ib qho hluav taws xob hluav taws xob txoj kev zoo tshaj Allison coj mus rau Kev ywj pheej Trike, " hais Kraft. “Kuv tau raug hloov mus los ntawm Allison txawm li cas los ib yam loj dua tsoo kuv zoo li ib tug tons ntawm cib hnub ntawd. Kuv muaj peb tug me nyuam nyob ze Allison's lub hnub nyoog thiab nws tau coj mus ua pov thawj meej meej tias Kim yuav fij qee yam los txhim kho Allison's muaj lub neej zoo. Lub sijhawm thib ob ntawd, Kuv paub tias peb tsis yog yuav mus pab AllisonTxawm li cas los xij, peb tau mus pab Kim dhau lawm. "

Kev Siv Hluav Taws Xob Siv Hluav Taws Xob siv rau 10 qhov kev ywj pheej Trikes rau kev tsim nyog cov tsev neeg nyob rau xyoo 2020 thiab npaj rau ob npaug ntxiv qhov ntau hauv 2021. EBT tau tshaj tawm Kimberly Heinrich: XNUMX Lab tus kiv cua tos koj rau Webtalk! txhawm rau pab qhov kev mob siab ntawd thiab sijhawm txog lub sijhawm xovxwm no, 4 ntawm kaum tus neeg tau txais kev pab tau raug xaiv. Kim yog qhov nyuaj ntawm kev ua haujlwm tshawb pom txog rau tom ntej.

HAIS TXOG LIBERTY TRIKE
Kev ywj pheej Trike yog ib feem ntawm Hluav Taws Xob Siv Hluav Taws Xob Siv Hluav Taws Xob, Inc., ib lub koomhaum uas ua kom tshwj xeeb ntawm kev loj hlob, tsim khoom thiab xa tawm cov nqi tsim nyog zoo hluav taws xob kev caij tsheb kauj vab tsav tsheb, cov cav tsheb, roj teeb, cov khoom siv, thiab cov khoom siv.

Txhawm rau kawm ntxiv, mus rau Kho SMA
Mloog rau Jason Kraft ua, nyob rau Greg Gutfeld Podcast
mus rau Tshuab Hluav Taws Xob Cov Tshuab Hluav Taws Xob
mus rau Kev ywj pheej Trike

Sib cuag: 
Robert Irving
215-514-6215
[email tiv thaiv]

QHOV TSEEB Hluav Taws Xob Hluav Taws Xob Applied sciences, Inc.